Wednesday, January 14, 2009

Another Better Day!!!!!!!
















Josie had another pretty good day today. She had some students and teachers from school come visit her. This was wonderful! Thank you guys for visiting Josie! I know it is a fairly long drive to St. Louis and we really appreciate it. She was awake a little more today and tried to play her Nintendo DS. She ate pretty good as well. We made a huge calender and a chart for Josie so she could see what day it is when she wakes up since she sleeps a lot. She likes to keep up on everything you know.LOL. It may be too soon to call Josie's progress a miracle, but we already feel like it is. She is much better than last weekend. Josie is the first pediatric to try a new medicine for rejection that really hasn't even been approved yet. She has had 3 treatments of this new medicine in a week and so far it has had some positive results. We hope and pray this will be a break thru for future CF patients. Josie wanted her doctor to list her name when these results were posted around the country for this new study. Her appetite has gotten better as well. She even ate some of her favorite french onion soup from the St. Louis Bread Company.(one of her favorite places to eat here in St. Louis) Thank goodness it's close to the hospital because it sure is COLD here.LOL! Hopefully our Jos will continue to keep getting better each day. We thank God for her progress!!! He must still have a plan for her. We also thank everyone for their prayers!!!!!!!!!! It is also nice to read all the warm comments made on the blog. We all read them each day, and it inspires us to know how many people really care!!!!!

37 comments:

  1. Josie my friend you are truly amazing and inspiring. God has work for you to do so get well and lets get to.
    Your cheerleader and friend in Christ
    Dale Childress

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  2. yea!!!! so thankful that josie FEELS better AND is doing better. praying for continued strength and healing, for josie's spirits, and for you as you continue to take care of her. my mom met someone this week who was asking her to pray for josie and had no idea my mom already was! what a small world. i also linked her blog to mine and had so many hits on it yesterday from people GOOGLE-ing "josie gray, lungs" trying to find out how she is doing. she is loved!

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  3. Another Great Day! I'm so happy for yall!! Jo is a very strong girl and i hope everyday is a better day for her!! I love her with every inch of my heart! She means so much to us! well i have to go get ready for school so ill be checking up later!!

    i love you josie hannah gray

    love carson

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  4. im glad she is getting better!

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  5. God is so Good. We are still praying for you all and we love you! Jeremy & Kristin & FBC Orchestra

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  6. Brandie and I have been keeping up with Josies progress. We are glad to see her improving. We will continue to pray for you all. Your family is truly an inspiration. God Bless you all. The Graves Family

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  7. wow! she truly is incredible! and God sure is good! He knows what is best, and even though we dont always understand His ways, we can always trust in the fact that His love and grace is there for us!
    Josie, you have so many people that have never even met you that are praying for you! we update our church every wednesday night on you during our mid-week prayer service.
    Chris, Heather, Jordan.........hang in there!
    we love yall and pray daily for Gods grace to be there for you!
    you know that if you need anything, ANYTHING at all, we are just a phone call away!

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  8. hello everyone

    God is wonderful. I am so happy to see Josie doing better. I have alot of people at work praying for her and at church. We love all of you.

    Margie, Lauren and Sam

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  9. We are Virginia Moore's ( 7th grader @ TRA)family. I am Susan (the mom) we have been praying for Josie and your family since we heard she desperately needed prayer. My husband, Dale, has been especially burdened to pray for a miracle for your little princess. You see, we have 5 children, Virginia being the youngest @ 12 yrs, and we can't even begin to imagine the difficulties you face every moment of every day. BUT, we know the God we love and serve hears our prayers and is able to do above and beyond what we pray. God is so good and he loves ya'll so much that He's got everyone around the Millington area praying for a very special little princess named Josie! We will continue to lift ya'll up to the throne of grace...............
    The Moore family

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  10. Glad she is doing well! We'll keep praying for her!

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  11. Prayers from a stranger...
    God's blessings to you Josie and to your entire family!
    I learned of this wonderful blog through an e-mail from the CF Foundation. My family and I walk each year in memory of a dear friend my daughter is named after who lost her fight with CF several years ago, Jessica Chaisson. We are so excited for your continued strength and the positive results of the new medication. Know that we are keeping up with you and sending fervent prayers your way!!
    Lynn and family, Bartlett, TN

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  12. We are so glad Josie is doing better. We have been faithfully praying that God's will be done for Josie and you. Hang in there...I know that you are all tired but just hang in there and keep fighting for Josie (because she is such a fighter!) We will continue to pray for your entire family. Please tell Josie we love her.

    Rebecca, Davin, Sally, Sarah Kate, Sydney and Beau Downing

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  13. Chris, Heather & Jordan- We are so pleased to hear of Josie's progress! We have been praying for you all! You are all an inspiration! Josie is a remarkable girl....we are blessed to know her. Megan always tells us that every time Josie sees her that she gives her a hug! Josie is a true reminder of God's grace and abounding love! We will continue to pray for her and for your entire family!
    Love, Johnie, Angela, Johnie, Austin, Megan, & Joshua

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  14. This is all great news. I am so glad to hear Josie is doing better. I guess that she is a great fighter. She doesn't take no for an answer. Keep it up Josie, God bless.

    Chris and Heather, keep staying strong, your believes and prayers are being answered. You are both fighters and it shows in your daughter.

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  15. Chris,Heather & family- Praise the Lord!! I am so happy to hear Josie is getting better each day.The Lord is wonderful!! Josie is such a special girl..We are praying for Josie each & everyday.Tell Josie we love her & we love yall!Love Holly,Daniel,Noah & Jacob Walls

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  16. Hearing of Josie's progress is a wonderful example of God's never ending love and work. I pray that Josie continues to fight, and you are all in my prayers every day!

    Love,
    Robyn Hornsby

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  17. Great News!!!! I am so happy to hear Josie is doing better. Kirby and Kelsey ask about her everyday. We will continue to pray for her recovery. Thanks for updating your blog. Everyone back here in Atoka is pulling for you!

    Ronnie, Tracy, Kirby, and Kelsey Frizzell

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  18. I would have to agree on the miracle, Heather! I sent an email here at Brighton High about Josie to ask for prayers for her. I have had several people stop and say they had her added to their church prayer lists. God has a plan for Josie and she hasn't completed it!!!! I have always been so encouraged by her smile and I never heard her complain. We will continue prayer for all of you guys!

    Shane, April, Hunter, Cale and Haley Simpson

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  19. I agree that God has great plans for Josie and for her family. She has been a fighter all of her life and she continues to fight. We're still praying that God's will be done in Josie. I firmly believe that she is an angel that God has put on this earth to accomplish wonderful things and she is certainly doing this. She's got a wonderful family and many, many friends pulling for her and praying for her. She has touched many lives and hearts and made a true difference in so many people's lives and she continues to do so. Ashton asked me to ask you to please tell Josie that she misses her, loves her, and is praying for her. Our prayers and love are with you all.

    Bill and Deb Melton

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  20. Wow-the power of prayer! I am so happy to see the miraculous improvement! God is Good!! I love and miss you Josie!
    Love, Laura

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  21. Dear Josie and Family,
    It is great hearing such great news!! We are a TRA family and my girls Anna Claire and Lexie are continuing to pray for you, your family and doctors!! They are still talking about the fun summer camp with Miss Amy, Miss Holly, Maddie Kate and Josie! We truly believe God has great plans for you,
    God Bless.
    Brad, Kerry, Anna Claire and Lexie Williams

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  22. I am so glad to hear this. GOD IS GOOD ALL THE TIME!!! Take care, love you all
    alicia

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  23. Dear Josie and Family,

    This is truly proof of the strength of prayer and the amazing power of the lord. I must thank your entire family for teaching us to value every day, every minute as it is truly a gift.

    The Judys

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  24. Happy to hear she is doing much better!

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  25. Josie, We love ya. You seem to be doing better. When we were there to see you last weekend we could not see you awake. I see now that people are able to come in and see you awake. Hope to see ya soon.
    Love Frazier's and Gramma and Papa

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  26. You are special beyond words. When God first gave us our Boney Macaroni 14 years ago, you touched all of us in a way that noone or nothing else ever had. Your attitude and strength has always left us speechless. I can promise you, that our prayers for you never stopped, regardless of circumstances- (but I am still sorry.) We are so proud to even know you, and I can't say enough about what a hero you are in so many ways to us and countless others. We truly know there is only one Jos. We love you so very very much. Aunt Carol, Cara (sissy), and Seth

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  27. hey!! i am so glad you had a good day!!i hope you keep having good days. i love you and miss you so much!!!

    Love, Sally

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  28. yay!!! Im so happy that makes me day, I love seeing Josies progress, still praying. God is so good.

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  29. hello josie and family. i was so excited when i heard, or read rather, of josie's progress. she has been the priority of not only my prayers, but also my friend's and their family's. she is loved by so many people, which you probably already knew. also if there is anything that my mother or myself can do, please don't hesitate to ask. well before i end this comment i would love if you could pass something to josie for me, if that's alright, if not that's fine.

    josie, i just want you to know that you are my hero. you have inspired me beyond any kind of words to explain. you amaze me day after day with your strength and your never give up attitude. you are most definitely one of a kind, and i'm so glad to have you as a friend. although you are miles and miles away, i keep you close in my heart; you're never technically far at all, even though that's how it seems. i love and miss you ever so much, and never forget how much i care about you.

    love always,
    megan mcdivitt

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  30. We are SO GLAD Josie is doing better!! We hope that she has MANY, MANY more good days to come!!! She is such an inspiration to us all and we are still praying for all of you daily. Thanks for the pictures. We love seeing her progress!

    Love,
    Madison and Susan

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  31. Josie Hannah Gray!! I love you with every inch of my heart!! You are such a strong and amazing person! I hope that you keep getting better!! You have inspired all of us!! You are in my family and everybody elses also! well i have to go! I hope you and your family keep getting better news!

    Love Carson

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  32. I am so glad to hear about her progress. My students at FACS have been praying for her and every day they ask me for updates. The kids are so excited to hear the miracles that God is working for Josie. We will continue to pray for more miracles to come!

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  33. Josie and family,
    Reading this good news made my day!
    Me and my friend Lauren Zvolanek are constantly checking this blog and asking around to find out about how Josie is doing.
    She means a lot to us!! She is an amazing girl and such a fighter! I'm so proud of her! Josie and your whole family have been in my prayers and y'all will continue to be. We are all supporting you back home!!
    I love you Josie!!
    Kelsey Deneka

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  34. I am so glad Josie is feeling better. My daughter requested prayer for Josie by posting her blog site on our family blogspot. That request has reached families in Michigan, Tennessee, Kentucky and Georgia. We will pray for Josie and your family.

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  35. Hey,
    im so glad to hear she is getting better by the
    i miss her so much and cant wait to see her just let her know im praying for and i love her


    <3 brandie

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  36. heyyy. im so happy that josie is gettin better. its been about 2 years since ive seen her, but im soo ready for her to come home so i can see her. i hope yall stay warm!!!! haha. i lova yall so much and everyone is still prayin!!!

    luv Brianna Donnell { I love u josie}
    plz tell her that i said hey and get better!!

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  37. JO! [b0b] ahh, im so glad that you're getting better! :) i love you truly with every inch of my heart! you dont even know how much i love and miss our fun times! gosh, we had sooo many funny/fun/crazyy times! haha! like that time we tried to sneak out and go rolling with haley! hahaha! we had the ladder and everything! lol! but we decided not to do that! lol! and the time we rode your golfcart over a curb! hahaha. there's still a black scuff mark on that curb too! :) them are just a few of them! like i said, we've had a lot of funn times! i think we need to have some more! :) bob, you dont even know how much i love you. so get better babe! i love you bobbybob! hahaha
    -Haley [fReD!]

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